We strongly believe that involving people with lived experience of Parkinson’s is essential to designing effective trials. We have worked together with people affected by Parkinson’s from the very start of the project to make sure that patient needs are at the heart of our design. By upholding patient values, our Patient and Care Partner Representatives are integral to all of our decision-making processes. They form our core Patient and Public Inclusion and Engagement Working Group in addition to contributing as members across all other Working Groups.
By linking in with wider equality, diversity and inclusion initiatives, we are seeking diverse experiences and input to work towards our goal of designing a trial that is inclusive and meaningful to everyone with Parkinson’s.