Patient & Public Involvement (PPI)
What is the Role of the PPIE Working Group?
Our Patient & Public Inclusion & Engagement (PPIE) Working Group are responsible for providing feedback on the decisions and directions of each of the other 5 Working Groups, from their perspective as people with Parkinson’s and Care Partners. Their input is invaluable for ensuring the design remains focused on patient needs and can be successful in its goals.
Meet the Chair
Dr Kevin McFarthing
Dr Kevin McFarthing is a Parkinson’s Research Advocate, joint editor of the ‘Clinical Trial Highlights’ in the Journal of Parkinson’s Disease and a member of the Research Committee of Cure Parkinson’s Trust.
Dr McFarthing collated the Parkinson’s Hope List, a thorough database of potential new therapies in research and clinical stages for Parkinson’s disease.
Dr McFarthing leads our PPIE Working Group who input and feedback on all project decisions to ensure that the proposals are informed by, acceptable to and endorsed by patients and their care partners/families.
Members of this working group
|PPIE & Infrastructure member, London
|PPIE & Infrastructure member, Hampshire
|PPIE & Treatment Selection member, Kent
|PPIE & Trial Design member, Hertfordshire
|PPIE & Trial Design member, Cornwall
|PPIE & Trial Design member, Hampshire
|PPIE & Funding member, Buckinghamshire
|PPIE & Funding member, West Midlands
|PPIE & Outcome Measures member, Kent
|PPIE & Outcome Measures member, Surrey
|PPIE & Infrastructure
|PPIE & Treatment Selection
|PPIE & Outcome Measures
|Cure Parkinson’s Trust, London
|University College London
|Parkinson’s UK, London
|Couch Health, London
University of Cardiff
|King’s College London