Get involved
Our Patient and Public Inclusion and Engagement (PPIE) Working Group contribute vital input to the project’s discussions and decisions.
Occasionally, there are topics that the group would like to receive further input on, to understand a wider perspective from the Parkinson’s community.
We are therefore looking for people with Parkinson’s and carers / partners, with an interest in research to form a wider PPIE network for the EJS ACT-PD project. Members of this network would be contacted with requests for further input when they arise, this might include being sent surveys, being asked to vote on options or being contacted to input on discussions.
Interested in joining the EJS ACT-PD wider PPIE network?
Read and download our pdf application form: here
Completed applications can be sent to [email protected]
The EJS ACT-PD trial will launch in 2025. We are looking for people with Parkinson’s (PwP) and their carers / partners to join the Trial Steering Committee as a patient or care partner representative.
The role of the EJS ACT-PD Trial Steering Committee (TSC) is to provide independent oversight for the trial, providing advice to the Trial Management Group (TMG), which is responsible for the day-to-day running of the trial, and making decisions when needed.
Find out more and download the application below here
