Patient & Public Involvement (PPI)
What is the Role of the PPIE Working Group?
Our Patient & Public Inclusion & Engagement (PPIE) Working Group are responsible for providing feedback on the decisions and directions of each of the other 5 Working Groups, from their perspective as people with Parkinson’s and Care Partners. Their input is invaluable for ensuring the design remains focused on patient needs and can be successful in its goals.
Meet the Chair
Dr Kevin McFarthing
Dr Kevin McFarthing is a Parkinson’s Research Advocate, joint editor of the ‘Clinical Trial Highlights’ in the Journal of Parkinson’s Disease and a member of the Research Committee of Cure Parkinson’s Trust.
Dr McFarthing collated the Parkinson’s Hope List, a thorough database of potential new therapies in research and clinical stages for Parkinson’s disease.
Dr McFarthing leads our PPIE Working Group who input and feedback on all project decisions to ensure that the proposals are informed by, acceptable to and endorsed by patients and their care partners/families.
Members of this working group
|Antony Morgan||PPIE & Infrastructure member, London|
|Sheila Wonnacott||PPIE & Infrastructure member, Hampshire|
|Paula Scurfield||PPIE & Treatment Selection member, Kent|
|Dorothy Salathiel||PPIE & Trial Design member, Hertfordshire|
|Sue Whipps||PPIE & Trial Design member, Cornwall|
|Anna Jewell||PPIE & Trial Design member, Hampshire|
|Laurel Miller||PPIE & Funding member, Buckinghamshire|
|Eric Deeson||PPIE & Funding member, West Midlands|
|Carroll Siu||PPIE & Outcome Measures member, Kent|
|Michèle Bartlett||PPIE & Outcome Measures member, Surrey|
|Jodie Forbes||PPIE & Infrastructure|
|Keith Martin||PPIE & Treatment Selection|
|Kuhan Pushparatnam||PPIE & Outcome Measures|
|Helen Matthews||Cure Parkinson’s Trust, London|
|Amit Batla||University College London|
|Nikul Bakshi||Parkinson’s UK, London|
|Natasha Ratcliff||Couch Health, London|
University of Cardiff
|Miriam Parry||King’s College London|