Get involved

Our Patient and Public Inclusion and Engagement (PPIE) Working Group contribute vital input to the project’s discussions and decisions.

Occasionally, there are topics that the group would like to receive further input on, to understand a wider perspective from the Parkinson’s community.

We are therefore looking for people with Parkinson’s and carers / partners, with an interest in research to form a wider PPIE network for the EJS ACT-PD project. Members of this network would be contacted with requests for further input when they arise, this might include being sent surveys, being asked to vote on options or being contacted to input on discussions.

Interested in joining the EJS ACT-PD wider PPIE network?

   Read and download our pdf application form: here

   Completed applications can be sent to

This survey aims to learn about facilitators and motivators and key barriers, which might support or discourage participation in Parkinson’s clinical trials. We hope to use this information to support more people with Parkinson’s to take part in research.

The survey is online, anonymous and completed in around 40 minutes.

All people with Parkinson’s can take part, whether they have taken part in research before or not and with or without the help of a care partner. For more information, please see the participant information included at the beginning of the survey before deciding whether to take part.