Our Patient and Public Inclusion and Engagement (PPIE) Working Group contribute vital input to the project’s discussions and decisions.
Occasionally, there are topics that the group would like to receive further input on, to understand a wider perspective from the Parkinson’s community.
We are therefore looking for people with Parkinson’s and carers / partners, with an interest in research to form a wider PPIE network for the EJS ACT-PD project. Members of this network would be contacted with requests for further input when they arise, this might include being sent surveys, being asked to vote on options or being contacted to input on discussions.
Interested in joining the EJS ACT-PD wider PPIE network?
Parkinson’s affects people from all backgrounds, but most research is focused on similar groups of participants. We need to support people from all communities to take part in research so that we can deliver the best possible care for everyone with Parkinson’s.
The Community Advisory Group will help to shape, influence, and guide the trial design to identify barriers and support participation for all people with Parkinson’s. Barriers to research involvement can include cultural differences, lack of transport and financial worries.
Interested in joining the EJS ACT-PD Community Advisory Group?