EJS ACT-PD

Accelerating Clinical Trials in Parkinson's

What is EJS ACT-PD?

This video provides an introduction to the EJS ACT-PD Initiative from our project co-leads: Professor Tom Foltynie (University College London) and Professor Camille Carroll (University of Plymouth).

(Subtitles available by clicking on the icon at the bottom of the video)

Latest Updates

Movement disorder congress

The EJS ACT-PD team were thrilled to attend and present at the recent MDS Congress in Madrid! The congress provided an amazing opportunity to further our understanding of the latest management strategies and research outcomes for Parkinson’s disease. Our brilliant Clinical Research Fellows presented 6 posters detailing all of our Working Groups amazing progress over the past year. You can find these on our ‘Updates and Outcomes’ page!

 

PPIE Wider Network

We are looking for people with Parkinson’s and carers / partners, with an interest in research to form a wider network for the EJS ACT-PD project! Members of this network would be contacted with requests for further input when our Patient and Public Inclusion and Engagement (PPIE) Working Group feel wider contribution would be helpful. This might include being sent surveys, being asked to vote on options or being contacted to input on discussions. Find out more on our ‘Get involved‘ page!

Protocol Writing Meeting

We are delighted to announce that the EJS ACT-PD steering group, core team and patient representatives have recently conducted a 3 day Protocol Writing Meeting in which we thoroughly discussed and reviewed working group recommendations and made important trial design decisions for inclusion in our first draft protocol. This has resulted in brilliant progress and has instilled renewed excitement for the development of this revolutionary trial platform going into the new year!

Previous Updates

Communications Team

We are delighted to announce that we have set up our communications team who will aid both internal and external communications including developing outputs in various formats e.g. educational videos to keep stakeholders and patients well-informed on trial progress.

ICTMC Conference 2022

The core team have learnt a great deal about effective and inclusive trial development at the 2022 International Clinical Trials Methodology Conference (ICTMC) in Harrogate. These insights will allow us to pre-empt and avoid many potential issues from impacting the overall success and experience of the EJS ACT-PD Trial.

Project Overview

The EJS ACT-PD Consortium is comprised of 6 Working Groups, an overarching Steering Group and an International Advisory Group. Whilst each Working Group is focused on a specific element of the project, they work collaboratively to reach consensus on all decisions made.

Associated Partners